Day 127 – success doesn’t mean the same thing to everyone
July being the busy month that it is, meant another birthday party to attend. This time it was for the son of one of my oldest friends. He was born with Cystic Fibrosis, an inherited condition that neither of his parents had, but who were still carriers of the gene. I won’t bother going into the details of the condition, as there is more than enough information on the internet, but needless to say it is typically a life limiting condition. His mother is always doing fundraising for CF research, and I’ve previously ran a half marathon to raise money for it too, and the continuous research is paying off as life expectancy for someone with CF is going up and up all the time.
This condition makes each birthday for him just a bit more special. He looks and acts healthy and normal now, but that may not always be the case. His mom works hard to ensure he gets everything he needs to limit the effect of the condition, and there are new drugs coming out that can help to drastically slow down the process, but funding is always an issue as they are notoriously expensive, and getting the government to fund these drugs is an ongoing battle!
Hopefully he will have a long and healthy life and will outlive us and his parents, and the chances are looking better all the time.
The girls had a lovely time at his party, even though Olivia was particularly freaked out by the arrival of the special guest, Batman, and decided that she didn’t want to take part in any of the activities until he’d gone. She’s never really seen batman before, as superheroes aren’t something that we watch in our house, it’s all Trolls, Peppa Pig and Paw Patrol, but that’s what you get when you have two girls!
I watch my friends who have boys, and whilst they are lovely, very cute to begin with, by the time they get to two years old, they are usually little energy bombs that are set on a path of destruction, smashing their way through life, and taking that bruises and cuts that come with it. Having girls is a very different scenario, life is generally more glittery and sedate. More cuddles and nail varnish than play fighting. It’s clearly genetic, the boys are in no way trained or encouraged to be rough and loud, and the girls are no more encouraged to sit and watch Disney films… all this seems to happen naturally. I’m very glad to have two little girls though, boys look exhausting!